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The Quest for Health Information Res...

Rossen, Beth Ellen,

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The Quest for Health Information Resources by Young Adults with Disabilities: Building Theory /

Record Type:	Electronic resources : Monograph/item
Title/Author:	The Quest for Health Information Resources by Young Adults with Disabilities: Building Theory // Beth Ellen Rossen.
Author:	Rossen, Beth Ellen,
Description:	1 electronic resource (237 pages)
Notes:	Source: Dissertations Abstracts International, Volume: 86-03, Section: B.
Contained By:	Dissertations Abstracts International86-03B.
Subject:	Public health. -
Online resource:	https://pqdd.sinica.edu.tw/twdaoapp/servlet/advanced?query=30817177
ISBN:	9798384296058

The Quest for Health Information Resources by Young Adults with Disabilities: Building Theory /
Rossen, Beth Ellen,

The Quest for Health Information Resources by Young Adults with Disabilities: Building Theory /Beth Ellen Rossen. - 1 electronic resource (237 pages)

Source: Dissertations Abstracts International, Volume: 86-03, Section: B.

This constructivist grounded theory study aims to understand the experiences of health information-seeking processes of young adults with lifelong physical disabilities during their transition from pediatric to adult healthcare. Its additional purpose is to build a theoretical framework comprised of the associated processes and sub-processes. Previous research has linked engaging in lifestyle health behaviours and health information-seeking. It has also found that, during the transition from pediatric to adult healthcare, young adults with lifelong physical disabilities engage in lifestyle health behaviours that put them at risk for secondary health conditions. The issue is exacerbated because, during this transition, these young adults often move from comprehensive, coordinated pediatric healthcare services to adult healthcare services that are less coordinated and inadequately address the multiple interrelated physical, psychological, and emotional problems that can accompany physical disability. Research has pointed to a paucity of relevant health information and resources available during this transition period. Furthermore, it has shown that little attention has been directed at health information-seeking by these young adults in transition. My study addresses the gap in knowledge about health information-seeking processes of young adults with lifelong physical disabilities as they transition from pediatric to adult healthcare. Accordingly, using Charmaz's constructivist grounded theory methodology, I conducted ten in-depth, semi-structured interviews and three subsequent in-depth theoretical sampling interviews with young adults with lifelong physical disabilities during their transition from pediatric to adult healthcare to learn more about their health information-seeking experiences and to develop a theoretical framework that incorporates health information-seeking processes and sub-processes. My iterative data analysis revealed four categories and their associated sub-categories related to the interplay concerning personhood (physical, cognitive, psychological aspects), emotion, and the broad context/environment that constitute the building blocks for a middle-range theory. The resulting theoretical framework embodies the core construct of the quest for health information resources by young adults with lifelong physical disabilities during their transition from pediatric to adult healthcare as well as these four categories and their sub-categories. Contributions of my findings to knowledge and theory, as well as their implications for clinical and public health practices, education for healthcare professionals, and policy emphasizing public health policy with a view to mitigating the health disparities of these young adults compared to their peers without disabilities, are discussed.

English

ISBN: 9798384296058Subjects--Topical Terms:

534748
Public health.
Subjects--Index Terms:

Disability

The Quest for Health Information Resources by Young Adults with Disabilities: Building Theory /
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520 $a This constructivist grounded theory study aims to understand the experiences of health information-seeking processes of young adults with lifelong physical disabilities during their transition from pediatric to adult healthcare. Its additional purpose is to build a theoretical framework comprised of the associated processes and sub-processes. Previous research has linked engaging in lifestyle health behaviours and health information-seeking. It has also found that, during the transition from pediatric to adult healthcare, young adults with lifelong physical disabilities engage in lifestyle health behaviours that put them at risk for secondary health conditions. The issue is exacerbated because, during this transition, these young adults often move from comprehensive, coordinated pediatric healthcare services to adult healthcare services that are less coordinated and inadequately address the multiple interrelated physical, psychological, and emotional problems that can accompany physical disability. Research has pointed to a paucity of relevant health information and resources available during this transition period. Furthermore, it has shown that little attention has been directed at health information-seeking by these young adults in transition. My study addresses the gap in knowledge about health information-seeking processes of young adults with lifelong physical disabilities as they transition from pediatric to adult healthcare. Accordingly, using Charmaz's constructivist grounded theory methodology, I conducted ten in-depth, semi-structured interviews and three subsequent in-depth theoretical sampling interviews with young adults with lifelong physical disabilities during their transition from pediatric to adult healthcare to learn more about their health information-seeking experiences and to develop a theoretical framework that incorporates health information-seeking processes and sub-processes. My iterative data analysis revealed four categories and their associated sub-categories related to the interplay concerning personhood (physical, cognitive, psychological aspects), emotion, and the broad context/environment that constitute the building blocks for a middle-range theory. The resulting theoretical framework embodies the core construct of the quest for health information resources by young adults with lifelong physical disabilities during their transition from pediatric to adult healthcare as well as these four categories and their sub-categories. Contributions of my findings to knowledge and theory, as well as their implications for clinical and public health practices, education for healthcare professionals, and policy emphasizing public health policy with a view to mitigating the health disparities of these young adults compared to their peers without disabilities, are discussed.
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