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A Qualitative Study of African Ameri...

McCowan, Precious A.,

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A Qualitative Study of African American Women Caregivers With Chronic Kidney Disease /

Record Type:	Electronic resources : Monograph/item
Title/Author:	A Qualitative Study of African American Women Caregivers With Chronic Kidney Disease // Precious A McCowan.
Author:	McCowan, Precious A.,
Description:	1 electronic resource (295 pages)
Notes:	Source: Dissertations Abstracts International, Volume: 86-03, Section: A.
Contained By:	Dissertations Abstracts International86-03A.
Subject:	Behavioral sciences. -
Online resource:	https://pqdd.sinica.edu.tw/twdaoapp/servlet/advanced?query=31560377
ISBN:	9798384064527

A Qualitative Study of African American Women Caregivers With Chronic Kidney Disease /
McCowan, Precious A.,

A Qualitative Study of African American Women Caregivers With Chronic Kidney Disease /Precious A McCowan. - 1 electronic resource (295 pages)

Source: Dissertations Abstracts International, Volume: 86-03, Section: A.

There are five stages of chronic kidney disease (CKD). Approximately 35.5 million individuals in the United States live with this chronic condition. However, African American women are more vulnerable to the risks of CKD. The African American female population is also more likely than their female counterparts to be primary family caregivers within their family unit. Prior research studies have shown that symptoms of CKD can affect an individual mentally and physically and may progress into end-stage renal disease (Stage 4 and 5 CKD) over time, worsening symptoms. Previous studies have also shown that serving as a family caregiver can become a burden, leading to depression, burnout, and isolation from others. African American women are likely to experience these hardships. The literature has displayed the experiences of family caregivers providing care to loved ones in need of assistance. Yet, the literature exposes a gap in the experiences of African American women with a chronic disease such as CKD serving as a family caregiver while balancing their healthcare needs. A generic qualitative study was conducted through semi-structured Zoom digital-recorded only interviews developed to collect information from a non-probability, purposive sample of 10 African American women with early-stage CKD (Stage 1, 2, or 3) who are family caregivers between the ages of 45-65 years. These participants were recruited from a national kidney organization in the United States. This study aimed to answer the research question, "What are the experiences of balancing healthcare needs and caregiver roles for African American women with CKD?" Raw data from each interview was transcribed, coded, and sorted for thematic analysis using ATLAS.ti. The results generated five primary themes: (a) family caregivers managing CKD, (b) family dynamics and relationships, (c) family caregiver responsibilities, coping mechanism, and self-care, (d) balancing healthcare needs and caregiver tasks, (e) social and emotional impact of being a family caregiver. These themes described the gaps in the literature on the experiences of African American female family caregivers balancing their healthcare needs and role as family caregivers. The results of this study align with the stress and coping theory, indicating that the participants encountered stressors and challenges managing CKD symptoms and tasks as family caregivers. Consistent with the stress and coping theory, participants demonstrated the positive reappraisal process from the perception of caregiver stressors and demanding responsibilities. However, they have implemented self-care skills and found benefits in providing care that have enhanced their health literacy and health outcomes despite their circumstances. This research study is relevant to the Advanced Studies in the Human Behavior field because it can enhance the knowledge of CKD professionals and advocates about the skills and resources needed for the population to provide effective caregiver services while managing CKD health. Furthermore, the literature indicates limited research on the studied population and their experiences.

English

ISBN: 9798384064527Subjects--Topical Terms:

529833
Behavioral sciences.
Subjects--Index Terms:

African American women

A Qualitative Study of African American Women Caregivers With Chronic Kidney Disease /
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520 $a There are five stages of chronic kidney disease (CKD). Approximately 35.5 million individuals in the United States live with this chronic condition. However, African American women are more vulnerable to the risks of CKD. The African American female population is also more likely than their female counterparts to be primary family caregivers within their family unit. Prior research studies have shown that symptoms of CKD can affect an individual mentally and physically and may progress into end-stage renal disease (Stage 4 and 5 CKD) over time, worsening symptoms. Previous studies have also shown that serving as a family caregiver can become a burden, leading to depression, burnout, and isolation from others. African American women are likely to experience these hardships. The literature has displayed the experiences of family caregivers providing care to loved ones in need of assistance. Yet, the literature exposes a gap in the experiences of African American women with a chronic disease such as CKD serving as a family caregiver while balancing their healthcare needs. A generic qualitative study was conducted through semi-structured Zoom digital-recorded only interviews developed to collect information from a non-probability, purposive sample of 10 African American women with early-stage CKD (Stage 1, 2, or 3) who are family caregivers between the ages of 45-65 years. These participants were recruited from a national kidney organization in the United States. This study aimed to answer the research question, "What are the experiences of balancing healthcare needs and caregiver roles for African American women with CKD?" Raw data from each interview was transcribed, coded, and sorted for thematic analysis using ATLAS.ti. The results generated five primary themes: (a) family caregivers managing CKD, (b) family dynamics and relationships, (c) family caregiver responsibilities, coping mechanism, and self-care, (d) balancing healthcare needs and caregiver tasks, (e) social and emotional impact of being a family caregiver. These themes described the gaps in the literature on the experiences of African American female family caregivers balancing their healthcare needs and role as family caregivers. The results of this study align with the stress and coping theory, indicating that the participants encountered stressors and challenges managing CKD symptoms and tasks as family caregivers. Consistent with the stress and coping theory, participants demonstrated the positive reappraisal process from the perception of caregiver stressors and demanding responsibilities. However, they have implemented self-care skills and found benefits in providing care that have enhanced their health literacy and health outcomes despite their circumstances. This research study is relevant to the Advanced Studies in the Human Behavior field because it can enhance the knowledge of CKD professionals and advocates about the skills and resources needed for the population to provide effective caregiver services while managing CKD health. Furthermore, the literature indicates limited research on the studied population and their experiences.
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