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Storytelling as Resource: Living Wit...

Mendevil, Victor Hugo,

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Storytelling as Resource: Living With Rare Disabilities Through Narrative and Writing /

Record Type:	Electronic resources : Monograph/item
Title/Author:	Storytelling as Resource: Living With Rare Disabilities Through Narrative and Writing // Victor Hugo Mendevil.
Author:	Mendevil, Victor Hugo,
Description:	1 electronic resource (53 pages)
Notes:	Source: Masters Abstracts International, Volume: 84-11.
Contained By:	Masters Abstracts International84-11.
Subject:	Disability studies. -
Online resource:	https://pqdd.sinica.edu.tw/twdaoapp/servlet/advanced?query=30420549
ISBN:	9798379536350

Storytelling as Resource: Living With Rare Disabilities Through Narrative and Writing /
Mendevil, Victor Hugo,

Storytelling as Resource: Living With Rare Disabilities Through Narrative and Writing /Victor Hugo Mendevil. - 1 electronic resource (53 pages)

Source: Masters Abstracts International, Volume: 84-11.

This paper argues that narrative and storytelling can be used as a resource for those living with rare disabilities. Using my experiences living with Myasthenia Gravis, a rare autoimmune disease, as a gateway into argument, I display the critical theories and storytelling methods against memoirs of authors living with rare disabilities and show how aspects of their memoirs function to benefit disabled communities and the depiction of disabled people in literature. I delve into questions within the realm of narrative theory, pondering how the narrative functions of disease in disability studies can become praxis for narrative medicine and storytelling-based healing. This paper pinpoints aspects of narrative medicine that contribute to medical healing and what aspects hinder it, while using my experiences as a patient advocate to shape and intersect the understanding of narrative theories in disability studies, especially when considering those living with rare disabilities. The research formulated in this paper explores how the topic of rare disease differs from other forms of narrative in the humanities; and to that end, how rare disease functions in creative constructions of text, such characterization, storytelling, depiction, and truth.

English

ISBN: 9798379536350Subjects--Topical Terms:

543687
Disability studies.
Subjects--Index Terms:

Disability literature

Storytelling as Resource: Living With Rare Disabilities Through Narrative and Writing /
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245 1 0 $a Storytelling as Resource: Living With Rare Disabilities Through Narrative and Writing / $c Victor Hugo Mendevil.
264 1 $a Ann Arbor : $b ProQuest Dissertations & Theses, $c 2023
300 $a 1 electronic resource (53 pages)
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500 $a Source: Masters Abstracts International, Volume: 84-11.
500 $a Advisors: Altschuler, Sari Committee members: Chute, Hillary.
502 $b M.A. $c Northeastern University $d 2023.
520 $a This paper argues that narrative and storytelling can be used as a resource for those living with rare disabilities. Using my experiences living with Myasthenia Gravis, a rare autoimmune disease, as a gateway into argument, I display the critical theories and storytelling methods against memoirs of authors living with rare disabilities and show how aspects of their memoirs function to benefit disabled communities and the depiction of disabled people in literature. I delve into questions within the realm of narrative theory, pondering how the narrative functions of disease in disability studies can become praxis for narrative medicine and storytelling-based healing. This paper pinpoints aspects of narrative medicine that contribute to medical healing and what aspects hinder it, while using my experiences as a patient advocate to shape and intersect the understanding of narrative theories in disability studies, especially when considering those living with rare disabilities. The research formulated in this paper explores how the topic of rare disease differs from other forms of narrative in the humanities; and to that end, how rare disease functions in creative constructions of text, such characterization, storytelling, depiction, and truth.
546 $a English
590 $a School code: 0160
650 4 $a Disability studies. $3 543687
650 4 $a Literature. $3 537498
650 4 $a English literature. $3 516356
650 4 $a British & Irish literature. $3 3284317
653 $a Disability literature
653 $a Myasthenia Gravis
653 $a Narrative medicine
653 $a Rare disability
653 $a Rare disease
653 $a Storytelling
690 $a 0201
690 $a 0401
690 $a 0593
710 2 $a Northeastern University. $b English. $e degree granting institution. $3 3814540
720 1 $a Altschuler, Sari $e degree supervisor.
773 0 $t Masters Abstracts International $g 84-11.
790 $a 0160
791 $a M.A.
792 $a 2023
856 4 0 $u https://pqdd.sinica.edu.tw/twdaoapp/servlet/advanced?query=30420549