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Work-Life Balance Among Family Careg...

Hellmers, Natalie.

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Work-Life Balance Among Family Caregivers of Adults With Parkinson's Disease.

Record Type:	Electronic resources : Monograph/item
Title/Author:	Work-Life Balance Among Family Caregivers of Adults With Parkinson's Disease./
Author:	Hellmers, Natalie.
Published:	Ann Arbor : ProQuest Dissertations & Theses, : 2024,
Description:	214 p.
Notes:	Source: Dissertations Abstracts International, Volume: 85-12, Section: B.
Contained By:	Dissertations Abstracts International85-12B.
Subject:	Nursing. -
Online resource:	https://pqdd.sinica.edu.tw/twdaoapp/servlet/advanced?query=30994087
ISBN:	9798383169070

Work-Life Balance Among Family Caregivers of Adults With Parkinson's Disease.
Hellmers, Natalie.

Work-Life Balance Among Family Caregivers of Adults With Parkinson's Disease. - Ann Arbor : ProQuest Dissertations & Theses, 2024 - 214 p.

Source: Dissertations Abstracts International, Volume: 85-12, Section: B.

Thesis (Ph.D.)--New York University, 2024.

Background: Parkinson's Disease is a progressive, neurodegenerative disease that results in the loss of motor function that requires the help of a family caregiver. For those family caregivers who must leave their jobs to become caregivers may experience a loss of wages and benefits over time. There is a gap of knowledge in understanding the work-life balance of these family caregivers and what their barriers and facilitators are in trying to maintain dual roles. The purpose of this convergent mixed methods study design is to explore family caregiver perspectives on work-life balance while caring for adults with Parkinson's Disease.Methods: Forty family caregivers were recruited online from PD support groups (September 2021- September 2022) and answered surveys on work-life balance, job characteristics, and individual factors. Subsequently, they participated in semi-structured interviews using Zoom audio. A convergent mixed methods study design was used. An informational matrix as a joint display constructed quantitative and qualitative data for within a case-by-case assessment of individual participants, as well as across assessments of all participants. The results of the quantitative measures (e.g., scores on work-life balance, job content, caregiver burden) was checked for convergence with themes revealed in the qualitative analysis of the interviews.Results:. This mixed methods study had several key findings. Significant caregiver burden was not associated with work-life balance survey scores. However, caregiver burden was strongly correlated with stress, well-being, and quality of life. The overarching theme from the qualitative analysis was that working caregivers adapt health promoting practices to fit within the context of their demands of caregiving. From the interviews, the three subthemes that emerged were: caregivers have a general awareness of the importance of their own health to be able to provide caregiving, many perceived going to work as a form of promoting their own well-being and{A0}selfcare, and while most caregivers had worker wellness programs available, they did not utilize them. From the integrated analysis, three main findings were identified. First, work-life balance was facilitated by meaningful job characteristics such as job flexibility, job proximity and supervisor support. Second, those who were still working but struggled with balancing both their jobs and caregiving found that they were compromised by caregiver burden when the time, stress and behaviors of the caregiver role influenced the ability to be fully present at work. Third, for some participants balancing life meant that they had to give up their work.Discussion: The results of this study have important implications for future research in occupational health research, chronic care, and caregiving research. Total Worker Health{phono}{mlrhring} program under the U.S. National Institute for Occupational Safety and Health encourages a workplace culture where employees are to engage in wellness programs that support wellbeing. Results from this study indicated that caregivers of adults with Parkinson's Disease, a neurological condition that advances over time, underutilize these programs. This has policy implication about employer reimbursement on exercise and health as well as family leave policies. Limitations of this study include a lack of diversity, most were in an urban setting, and those with service jobs were minimally represented in the sample.Conclusion: This study explored the deep interrelated phenomena of work-life balance among working caregivers of those with PD. Future research on a larger and more diverse sample is needed to better understand this vulnerable working population.

ISBN: 9798383169070Subjects--Topical Terms:

528444
Nursing.
Subjects--Index Terms:

Informal caregiving

Work-Life Balance Among Family Caregivers of Adults With Parkinson's Disease.
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500 $a Advisor: Witkoski Stimpfel, Amy.
502 $a Thesis (Ph.D.)--New York University, 2024.
520 $a Background: Parkinson's Disease is a progressive, neurodegenerative disease that results in the loss of motor function that requires the help of a family caregiver. For those family caregivers who must leave their jobs to become caregivers may experience a loss of wages and benefits over time. There is a gap of knowledge in understanding the work-life balance of these family caregivers and what their barriers and facilitators are in trying to maintain dual roles. The purpose of this convergent mixed methods study design is to explore family caregiver perspectives on work-life balance while caring for adults with Parkinson's Disease.Methods: Forty family caregivers were recruited online from PD support groups (September 2021- September 2022) and answered surveys on work-life balance, job characteristics, and individual factors. Subsequently, they participated in semi-structured interviews using Zoom audio. A convergent mixed methods study design was used. An informational matrix as a joint display constructed quantitative and qualitative data for within a case-by-case assessment of individual participants, as well as across assessments of all participants. The results of the quantitative measures (e.g., scores on work-life balance, job content, caregiver burden) was checked for convergence with themes revealed in the qualitative analysis of the interviews.Results:. This mixed methods study had several key findings. Significant caregiver burden was not associated with work-life balance survey scores. However, caregiver burden was strongly correlated with stress, well-being, and quality of life. The overarching theme from the qualitative analysis was that working caregivers adapt health promoting practices to fit within the context of their demands of caregiving. From the interviews, the three subthemes that emerged were: caregivers have a general awareness of the importance of their own health to be able to provide caregiving, many perceived going to work as a form of promoting their own well-being and{A0}selfcare, and while most caregivers had worker wellness programs available, they did not utilize them. From the integrated analysis, three main findings were identified. First, work-life balance was facilitated by meaningful job characteristics such as job flexibility, job proximity and supervisor support. Second, those who were still working but struggled with balancing both their jobs and caregiving found that they were compromised by caregiver burden when the time, stress and behaviors of the caregiver role influenced the ability to be fully present at work. Third, for some participants balancing life meant that they had to give up their work.Discussion: The results of this study have important implications for future research in occupational health research, chronic care, and caregiving research. Total Worker Health{phono}{mlrhring} program under the U.S. National Institute for Occupational Safety and Health encourages a workplace culture where employees are to engage in wellness programs that support wellbeing. Results from this study indicated that caregivers of adults with Parkinson's Disease, a neurological condition that advances over time, underutilize these programs. This has policy implication about employer reimbursement on exercise and health as well as family leave policies. Limitations of this study include a lack of diversity, most were in an urban setting, and those with service jobs were minimally represented in the sample.Conclusion: This study explored the deep interrelated phenomena of work-life balance among working caregivers of those with PD. Future research on a larger and more diverse sample is needed to better understand this vulnerable working population.
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