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The Experience of Caregiver Coping and Perceived Needs in Schizophrenia: An Exploratory Study of Indian Caregivers.

Record Type:	Electronic resources : Monograph/item
Title/Author:	The Experience of Caregiver Coping and Perceived Needs in Schizophrenia: An Exploratory Study of Indian Caregivers./
Author:	Narayanan, Thekkepat Kavitha.
Published:	Ann Arbor : ProQuest Dissertations & Theses, : 2021,
Description:	228 p.
Notes:	Source: Dissertations Abstracts International, Volume: 82-12, Section: B.
Contained By:	Dissertations Abstracts International82-12B.
Subject:	Clinical psychology. -
Online resource:	http://pqdd.sinica.edu.tw/twdaoapp/servlet/advanced?query=28543429
ISBN:	9798516053351

The Experience of Caregiver Coping and Perceived Needs in Schizophrenia: An Exploratory Study of Indian Caregivers.
Narayanan, Thekkepat Kavitha.

The Experience of Caregiver Coping and Perceived Needs in Schizophrenia: An Exploratory Study of Indian Caregivers. - Ann Arbor : ProQuest Dissertations & Theses, 2021 - 228 p.

Source: Dissertations Abstracts International, Volume: 82-12, Section: B.

Thesis (Psy.D.)--Alliant International University, 2021.

This item must not be sold to any third party vendors.

AbstractInformal caregiving results in substantial physical and psychological costs for those assisting a loved one with a debilitating disability such as schizophrenia. In a developing nation like India, where over 90% of patients depend on family members for primary provision of care, the possibilities of caregiving burden remain high and largely unaddressed. This study examined caregiver experiences of primary informal caregivers of patients with schizophrenia in the Indian cultural context. Gender, relationship status and cultural influences were given special consideration. Ten primary caregivers from a diverse geographical area within Mumbai, India were recruited, five women and five men with relationship of spouse (n = 5) or parent (n = 5) to the patient. A semi-structured, open-ended interview schedule addressed caregiving experience, impact, cultural variables, and perceived needs. A qualitative approach using broad thematic analysis analyzed the interviews into themes and sub themes. The results yielded 13 main themes and 36 sub themes under four categories. Under the caregiving experience, the four main themes identified were caregiving role, reactions to diagnosis, relationship changes, and emotional trajectory during the initial and sustained phases of caregiving. Acceptance, social distancing, and frustration were among the most highly endorsed sub themes across gender and relationship status. Parents and female caregivers were better able than male caregivers and spouses to support positive emotions like contentment and improved bonding during sustained caregiving phases. Some of the most potent hidden caregiving costs included effects on physical and mental well-being and effects of social stigma. The Indian cultural variables were perhaps the most enriching aspect of the results. Five main categories were identified including family dutifulness, religion, treatment and healing, the guru's contribution, belief in the Hindu philosophy of Karma, and the role of destiny. Religious beliefs and familism were supported by 100% of female caregivers and parents. Finally, the most pressing needs included help with Activities of Daily Living, needs for financial and social support, needs for increased support from the government with financial aid, access to resources, and caregiver support groups. The findings stress the importance of studying caregiving experiences and outcomes within the framework of specific cultural contexts and religious beliefs.

ISBN: 9798516053351Subjects--Topical Terms:

524863
Clinical psychology.
Subjects--Index Terms:

Coping

The Experience of Caregiver Coping and Perceived Needs in Schizophrenia: An Exploratory Study of Indian Caregivers.
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500 $a Includes supplementary digital materials.
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506 $a This item must not be sold to any third party vendors.
520 $a AbstractInformal caregiving results in substantial physical and psychological costs for those assisting a loved one with a debilitating disability such as schizophrenia. In a developing nation like India, where over 90% of patients depend on family members for primary provision of care, the possibilities of caregiving burden remain high and largely unaddressed. This study examined caregiver experiences of primary informal caregivers of patients with schizophrenia in the Indian cultural context. Gender, relationship status and cultural influences were given special consideration. Ten primary caregivers from a diverse geographical area within Mumbai, India were recruited, five women and five men with relationship of spouse (n = 5) or parent (n = 5) to the patient. A semi-structured, open-ended interview schedule addressed caregiving experience, impact, cultural variables, and perceived needs. A qualitative approach using broad thematic analysis analyzed the interviews into themes and sub themes. The results yielded 13 main themes and 36 sub themes under four categories. Under the caregiving experience, the four main themes identified were caregiving role, reactions to diagnosis, relationship changes, and emotional trajectory during the initial and sustained phases of caregiving. Acceptance, social distancing, and frustration were among the most highly endorsed sub themes across gender and relationship status. Parents and female caregivers were better able than male caregivers and spouses to support positive emotions like contentment and improved bonding during sustained caregiving phases. Some of the most potent hidden caregiving costs included effects on physical and mental well-being and effects of social stigma. The Indian cultural variables were perhaps the most enriching aspect of the results. Five main categories were identified including family dutifulness, religion, treatment and healing, the guru's contribution, belief in the Hindu philosophy of Karma, and the role of destiny. Religious beliefs and familism were supported by 100% of female caregivers and parents. Finally, the most pressing needs included help with Activities of Daily Living, needs for financial and social support, needs for increased support from the government with financial aid, access to resources, and caregiver support groups. The findings stress the importance of studying caregiving experiences and outcomes within the framework of specific cultural contexts and religious beliefs.
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