東華大學圖書館 |

Language: English

Help

回圖書館首頁

手機版館藏查詢

Back

Switch To: Labeled | MARC Mode | ISBD

Community engagement in research: Le...

Holzer, Jessica Kristin.

Linked to FindBook

Google Book

Amazon

博客來

Community engagement in research: Lessons from the clinical and translational science award program and the development of a framework to determine the ethical duty to engage communties in research.

Record Type:	Language materials, printed : Monograph/item
Title/Author:	Community engagement in research: Lessons from the clinical and translational science award program and the development of a framework to determine the ethical duty to engage communties in research./
Author:	Holzer, Jessica Kristin.
Description:	175 p.
Notes:	Source: Dissertation Abstracts International, Volume: 74-03(E), Section: B.
Contained By:	Dissertation Abstracts International74-03B(E).
Subject:	Health Sciences, Public Health. -
Online resource:	http://pqdd.sinica.edu.tw/twdaoapp/servlet/advanced?query=3533306
ISBN:	9781267770905

Community engagement in research: Lessons from the clinical and translational science award program and the development of a framework to determine the ethical duty to engage communties in research.
Holzer, Jessica Kristin.

Community engagement in research: Lessons from the clinical and translational science award program and the development of a framework to determine the ethical duty to engage communties in research. - 175 p.

Source: Dissertation Abstracts International, Volume: 74-03(E), Section: B.

Thesis (Ph.D.)--The Johns Hopkins University, 2012.

This dissertation combines two empirical phases and a conceptual phase addressing community engagement in research.

ISBN: 9781267770905Subjects--Topical Terms:

1017659
Health Sciences, Public Health.

Community engagement in research: Lessons from the clinical and translational science award program and the development of a framework to determine the ethical duty to engage communties in research.
LDR:04611nam a2200313 4500 001 1960828
005 20140701144631.5
008 150210s2012 ||||||||||||||||| ||eng d
020 $a 9781267770905
035 $a (MiAaPQ)AAI3533306
035 $a AAI3533306
040 $a MiAaPQ $c MiAaPQ
100 1 $a Holzer, Jessica Kristin. $3 2096573
245 1 0 $a Community engagement in research: Lessons from the clinical and translational science award program and the development of a framework to determine the ethical duty to engage communties in research.
300 $a 175 p.
500 $a Source: Dissertation Abstracts International, Volume: 74-03(E), Section: B.
500 $a Adviser: Nancy Kass.
502 $a Thesis (Ph.D.)--The Johns Hopkins University, 2012.
520 $a This dissertation combines two empirical phases and a conceptual phase addressing community engagement in research.
520 $a The empirical phases focus on qualitative data collected from the first 12 institutions receiving funding through the CTSA program in 2006. In the first study, the original and renewal grant applications submitted by the institutions for CTSA funding were reviewed for definitions of community and community engagement, descriptions of strategies for engagement the institutions planned to employ, and changes over time. Twelve original and 10 renewal grant applications from the institutions were reviewed. Findings suggest the institutions are using definitions of community that include faulty/staff/students at the institution, community care providers, racial/ethnic/culturally designated communities, and communities defined by disease or condition. The engagement strategies were varied, including instrumental and applied engagement strategies. Between the original and renewal grant periods, most institutions expanded their strategies, with greater numbers adding pilot grant programs and increasing community representation on a variety of boards. Importantly, the institutional-level nature of the CTSA funding made it possible for the engagement strategies to find broad exposure and increased value for connecting researchers and potential partners. The results may be helpful for other CTSAs, as well as non-CTSA institutions considering institutional approaches to engagement.
520 $a The second empirical phase consisted of qualitative semi-structured interviews with staff from the community engagement core of each institution's CTSA and supports and challenges experienced by the core over the course of implementing the CTSA. Nine of the 12 potential institutions participated; two refused to participate and the third was deemed ineligible due to recent staff turnover. The goal was to have interviews with the core director and a program manager or other staff member closely involved with the community engagement core on a daily basis, for a total of two interviews at each institution. At eight institutions, two interviews were conducted, while at the ninth, only the core director was available. A total of 17 interviews provided the data from which themes about supports and challenges in engagement were drawn. Funding and leadership were highlighted as sources of support, but also potential challenges where they were lacking. A key challenge included unsustainable models of engagement, which included mismatches between expected and actual effort required, differences in research and community partner priorities, and lack of a pathway for junior faculty to become involved. The findings from this phase suggest ways the NIH and other institutions can support and promote community engagement in research, and ways failing to invest and support engagement can hamper its success. The implications apply to CTSA and non-CTSA institutions, as well as research funding agencies nationwide.
520 $a The conceptual phase attempts to develop a framework establishing an ethical duty to engage communities in research based on characteristics of research, researchers, the research context, communities, and more. The purpose of the framework is to explicitly define when and justify why community engagement is ethically necessary in research. The intention of the framework is to supply researchers and institutional review boards with guidance in deliberations about when to include communities in research. (Abstract shortened by UMI.).
590 $a School code: 0098.
650 4 $a Health Sciences, Public Health. $3 1017659
650 4 $a Health Sciences, Medical Ethics. $3 1669715
690 $a 0573
690 $a 0497
710 2 $a The Johns Hopkins University. $3 1017431
773 0 $t Dissertation Abstracts International $g 74-03B(E).
790 $a 0098
791 $a Ph.D.
792 $a 2012
793 $a English
856 4 0 $u http://pqdd.sinica.edu.tw/twdaoapp/servlet/advanced?query=3533306