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The informed consent process and its...

Alexander, Leah Raynell.

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The informed consent process and its effect on minority participation in cancer-related research.

Record Type:	Electronic resources : Monograph/item
Title/Author:	The informed consent process and its effect on minority participation in cancer-related research./
Author:	Alexander, Leah Raynell.
Description:	97 p.
Notes:	Source: Dissertation Abstracts International, Volume: 64-08, Section: B, page: 3770.
Contained By:	Dissertation Abstracts International64-08B.
Subject:	Health Sciences, Public Health. -
Online resource:	http://pqdd.sinica.edu.tw/twdaoapp/servlet/advanced?query=3101489

The informed consent process and its effect on minority participation in cancer-related research.
Alexander, Leah Raynell.

The informed consent process and its effect on minority participation in cancer-related research. - 97 p.

Source: Dissertation Abstracts International, Volume: 64-08, Section: B, page: 3770.

Thesis (Ph.D.)--The University of Alabama at Birmingham, 2003.

Participation in clinical trials and cancer-related research provides its participants with access to state-of-the-art therapy. In spite of statistics that indicate disparate cancer incidence rates and poorer cancer survival rates as compared to Caucasians, studies have shown that African Americans, as well as other minorities, are less likely to participate than Caucasians. Although numerous studies have documented this disparity and elucidated the factors that contribute to this lack of participation, few have considered how the format used to deliver informed consent can influence the decision to participate.Subjects--Topical Terms:

1017659
Health Sciences, Public Health.

The informed consent process and its effect on minority participation in cancer-related research.
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100 1 $a Alexander, Leah Raynell. $3 1943851
245 1 0 $a The informed consent process and its effect on minority participation in cancer-related research.
300 $a 97 p.
500 $a Source: Dissertation Abstracts International, Volume: 64-08, Section: B, page: 3770.
500 $a Chair: Connie Kohler.
502 $a Thesis (Ph.D.)--The University of Alabama at Birmingham, 2003.
520 $a Participation in clinical trials and cancer-related research provides its participants with access to state-of-the-art therapy. In spite of statistics that indicate disparate cancer incidence rates and poorer cancer survival rates as compared to Caucasians, studies have shown that African Americans, as well as other minorities, are less likely to participate than Caucasians. Although numerous studies have documented this disparity and elucidated the factors that contribute to this lack of participation, few have considered how the format used to deliver informed consent can influence the decision to participate.
520 $a The purpose of this study was to determine whether a computer-delivered, multimedia informed consent process could improve comprehension of informed consent topics, satisfaction with the informed consent process, perception of the researcher, and intention to participate among African American men and women. A convenience sample comprised of 124 adults between the ages of 18 and 50 was recruited to participate in the study. Participants were randomly allocated to receive the informed consent information via a written, traditional format or a computer-delivered format. Statistical analyses revealed significant differences with regard to comprehension, satisfaction, and perception of the researcher. In addition, the participants randomized to the computer-delivered informed consent process exhibited a more positive intent to participate than the participants randomized to the traditional informed consent process. Finally, perception of the researcher emerged as the only significant predictor of participation. Based on significant findings from this study, a computer-delivered informed consent process designed to increase comprehension and satisfaction and generate positive perceptions of researchers may provide a viable solution to some of the problems related to obtaining informed consent and recruiting research participants.
590 $a School code: 0005.
650 4 $a Health Sciences, Public Health. $3 1017659
650 4 $a Black Studies. $3 1017673
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690 $a 0325
710 2 0 $a The University of Alabama at Birmingham. $3 1019443
773 0 $t Dissertation Abstracts International $g 64-08B.
790 1 0 $a Kohler, Connie, $e advisor
790 $a 0005
791 $a Ph.D.
792 $a 2003
856 4 0 $u http://pqdd.sinica.edu.tw/twdaoapp/servlet/advanced?query=3101489