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Genetic cancer risk assessment and e...

MacDonald, Deborah Jean.

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Genetic cancer risk assessment and ethnic differences in family communication of breast and ovarian cancer risk.

Record Type:	Electronic resources : Monograph/item
Title/Author:	Genetic cancer risk assessment and ethnic differences in family communication of breast and ovarian cancer risk./
Author:	MacDonald, Deborah Jean.
Description:	224 p.
Notes:	Source: Dissertation Abstracts International, Volume: 68-03, Section: B, page: 1559.
Contained By:	Dissertation Abstracts International68-03B.
Subject:	Health Sciences, Nursing. -
Online resource:	http://pqdd.sinica.edu.tw/twdaoapp/servlet/advanced?query=3254774

Genetic cancer risk assessment and ethnic differences in family communication of breast and ovarian cancer risk.
MacDonald, Deborah Jean.

Genetic cancer risk assessment and ethnic differences in family communication of breast and ovarian cancer risk. - 224 p.

Source: Dissertation Abstracts International, Volume: 68-03, Section: B, page: 1559.

Thesis (Ph.D.)--University of California, Los Angeles, 2006.

Women at-risk for breast or ovarian cancers are increasingly referred for genetic cancer risk assessment (GCRA) and urged to communicate risk findings to family members. Because little is known about factors influencing this communication and the resultant impact, particularly in Latinas, three secondary analyses studies (two quantitative, one qualitative) were conducted using survey and focus group datasets from the City of Hope Cancer Center. To guide the studies, a theoretical framework "Communication of Cancer Risk in Families at Risk for Breast and Ovarian Cancers" (CCRF), was created, integrating concepts from health promotion models, to explore the relationship of demographic/family, cultural, and health status factors to risk communication.Subjects--Topical Terms:

1017798
Health Sciences, Nursing.

Genetic cancer risk assessment and ethnic differences in family communication of breast and ovarian cancer risk.
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035 $a (UMI)AAI3254774
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100 1 $a MacDonald, Deborah Jean. $3 1918016
245 1 0 $a Genetic cancer risk assessment and ethnic differences in family communication of breast and ovarian cancer risk.
300 $a 224 p.
500 $a Source: Dissertation Abstracts International, Volume: 68-03, Section: B, page: 1559.
500 $a Adviser: Linda Sarna.
502 $a Thesis (Ph.D.)--University of California, Los Angeles, 2006.
520 $a Women at-risk for breast or ovarian cancers are increasingly referred for genetic cancer risk assessment (GCRA) and urged to communicate risk findings to family members. Because little is known about factors influencing this communication and the resultant impact, particularly in Latinas, three secondary analyses studies (two quantitative, one qualitative) were conducted using survey and focus group datasets from the City of Hope Cancer Center. To guide the studies, a theoretical framework "Communication of Cancer Risk in Families at Risk for Breast and Ovarian Cancers" (CCRF), was created, integrating concepts from health promotion models, to explore the relationship of demographic/family, cultural, and health status factors to risk communication.
520 $a Study 1 found little difference between the 183 Latinas and 292 non-Latina Whites regarding beliefs about informing relatives of genetic cancer risk. Most believed that this was a personal and in person duty, although more Latinas believed that a healthcare provider should convey this information and fewer Latinas endorsed informing by correspondence. Education, ethnicity and primarily speaking Spanish were independently associated with these beliefs.
520 $a Study 2 found that most of the 122 primarily non-Latinas discussed cancer risk with 1st-degree relatives, especially females, pre- and post-GCRA. The most frequently reported communication barriers were loss of contact, geographical distance, and concern for upsetting others. Post-GCRA, women reported significantly fewer discussions outside the nuclear family, that difficult family relationships were more of a communication barrier, and that upsetting relatives was less of a barrier (only for BRCA -negative women).
520 $a Study 3 revealed the impact of GCRA on 22 women (21 non-Latina) who attended a focus group ≥6 months post-GCRA. Women were very concerned about cancer risk for their family, and wanted time to review information received in GCRA before making healthcare decisions. GCRA helped women to stop attributing cancer to their own behaviors. Some women who did not have BRCA testing or who had a negative result were disappointed; they wanted more definitive cancer risk information.
520 $a The CCRF framework was at least partially supported but more research is needed for theory development that eventuates in positive, and minimizes negative, outcomes of cancer risk communication in families.
590 $a School code: 0031.
650 4 $a Health Sciences, Nursing. $3 1017798
650 4 $a Health Sciences, Epidemiology. $3 1019544
650 4 $a Health Sciences, Oncology. $3 1018566
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710 2 0 $a University of California, Los Angeles. $3 626622
773 0 $t Dissertation Abstracts International $g 68-03B.
790 1 0 $a Sarna, Linda, $e advisor
790 $a 0031
791 $a Ph.D.
792 $a 2006
856 4 0 $u http://pqdd.sinica.edu.tw/twdaoapp/servlet/advanced?query=3254774