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An investigation of the unique suppo...

Seidel, Meredith L.

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An investigation of the unique support needs of families of children with Down syndrome and leukemia.

Record Type:	Language materials, printed : Monograph/item
Title/Author:	An investigation of the unique support needs of families of children with Down syndrome and leukemia./
Author:	Seidel, Meredith L.
Description:	44 p.
Notes:	Source: Masters Abstracts International, Volume: 48-05, page: 2755.
Contained By:	Masters Abstracts International48-05.
Subject:	Social Work. -
Online resource:	http://pqdd.sinica.edu.tw/twdaoapp/servlet/advanced?query=1475615
ISBN:	9781109749144

An investigation of the unique support needs of families of children with Down syndrome and leukemia.
Seidel, Meredith L.

An investigation of the unique support needs of families of children with Down syndrome and leukemia. - 44 p.

Source: Masters Abstracts International, Volume: 48-05, page: 2755.

Thesis (M.S.)--Mount Sinai School of Medicine of New York University, 2010.

Down syndrome is the most common chromosomal abnormality found in live births. It results in mild to moderate mental retardation, as well an increased incidence of certain medical conditions such as congenital heart disease, hypothyroidism, gastrointestinal complications, and problems with vision and hearing. In addition, individuals with Down syndrome are at up to a 20-fold greater risk of developing leukemia than individuals in the general population. Previous work with a group of families of individuals with Down syndrome who have also had a diagnosis of leukemia suggested that the psychosocial support needs of these families are unique, and that services to fully address their needs may not exist. We conducted focus group-style interviews with members of these families to better understand their experiences and needs. We used the data gathered to make recommendations for the development of support systems designed specifically for these families.

ISBN: 9781109749144Subjects--Topical Terms:

617587
Social Work.

An investigation of the unique support needs of families of children with Down syndrome and leukemia.
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100 1 $a Seidel, Meredith L. $3 1671749
245 1 3 $a An investigation of the unique support needs of families of children with Down syndrome and leukemia.
300 $a 44 p.
500 $a Source: Masters Abstracts International, Volume: 48-05, page: 2755.
500 $a Adviser: Nancy Cincotta.
502 $a Thesis (M.S.)--Mount Sinai School of Medicine of New York University, 2010.
520 $a Down syndrome is the most common chromosomal abnormality found in live births. It results in mild to moderate mental retardation, as well an increased incidence of certain medical conditions such as congenital heart disease, hypothyroidism, gastrointestinal complications, and problems with vision and hearing. In addition, individuals with Down syndrome are at up to a 20-fold greater risk of developing leukemia than individuals in the general population. Previous work with a group of families of individuals with Down syndrome who have also had a diagnosis of leukemia suggested that the psychosocial support needs of these families are unique, and that services to fully address their needs may not exist. We conducted focus group-style interviews with members of these families to better understand their experiences and needs. We used the data gathered to make recommendations for the development of support systems designed specifically for these families.
590 $a School code: 1353.
650 4 $a Social Work. $3 617587
650 4 $a Health Sciences, General. $3 1017817
650 4 $a Psychology, Developmental. $3 1017557
690 $a 0452
690 $a 0566
690 $a 0620
710 2 $a Mount Sinai School of Medicine of New York University. $b Genetics and Genomic Sciences. $3 1671750
773 0 $t Masters Abstracts International $g 48-05.
790 1 0 $a Cincotta, Nancy, $e advisor
790 $a 1353
791 $a M.S.
792 $a 2010
856 4 0 $u http://pqdd.sinica.edu.tw/twdaoapp/servlet/advanced?query=1475615