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Examining Health Literacy and Medica...

Alexander, Karah.

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Examining Health Literacy and Medical Discrimination in Black Caregivers of Persons Living With Dementia: An Explanatory Sequential Mixed Methods Study.

Record Type:	Electronic resources : Monograph/item
Title/Author:	Examining Health Literacy and Medical Discrimination in Black Caregivers of Persons Living With Dementia: An Explanatory Sequential Mixed Methods Study./
Author:	Alexander, Karah.
Published:	Ann Arbor : ProQuest Dissertations & Theses, : 2024,
Description:	104 p.
Notes:	Source: Dissertations Abstracts International, Volume: 85-12, Section: B.
Contained By:	Dissertations Abstracts International85-12B.
Subject:	Gerontology. -
Online resource:	https://pqdd.sinica.edu.tw/twdaoapp/servlet/advanced?query=31458298
ISBN:	9798382812076

Examining Health Literacy and Medical Discrimination in Black Caregivers of Persons Living With Dementia: An Explanatory Sequential Mixed Methods Study.
Alexander, Karah.

Examining Health Literacy and Medical Discrimination in Black Caregivers of Persons Living With Dementia: An Explanatory Sequential Mixed Methods Study. - Ann Arbor : ProQuest Dissertations & Theses, 2024 - 104 p.

Source: Dissertations Abstracts International, Volume: 85-12, Section: B.

Thesis (Ph.D.)--Emory University, 2024.

Background: Disparities in the Black dementia family caregiving experience are well-documented, specifically in healthcare management. Black caregivers experience challenges with healthcare system navigation, communication with healthcare providers, and have limited knowledge of and access to dementia-related information and resources. These tasks require adequate health literacy. Individual health literacy may contribute to disparities in healthcare management among Black caregivers of persons living with dementia (PLWD). Despite the existing exploration of health literacy and previous study findings highlighting its importance in family caregiving, these studies included few to no Black caregivers. Rates of limited health literacy are higher among Black Americans. Medical discrimination may also contribute to challenges with healthcare management among Black caregivers, as well as present a barrier to achieving/maintaining optimal health literacy.Purpose: The purpose of this study was to examine health literacy and medical discrimination in Black caregivers of PLWD.{A0}Methods: An explanatory sequential mixed methods study was conducted in a sample of Black caregivers of PLWD. A cross-sectional quantitative design was first carried out, and a survey was distributed to 99 Black caregivers across the U.S. Follow-up qualitative procedures consisted of 4 focus groups with a purposeful sub-sample of 10 caregivers guided by the Discover and Define phases of the Design Thinking Process. Data integration took place at the planning stage for qualitative procedures (methods) and analytic and interpretation stages. Meta-inferences were drawn from integrated data.{A0}Findings: Caregivers scored highest on the health literacy scale 'Understanding health information well enough to know what to do' and lowest on the scale 'Feeling understood and supported by healthcare providers.' Bivariate analyses of health literacy scales and medical discrimination scores were all significant; as caregivers' experiences of medical discrimination while seeking care for PLWD increased, health literacy scale scores decreased. Qualitative data gave a deeper understanding of Black caregivers' most salient health literacy problems. Receiving health information in medical jargon; insurance coverage dictates navigation; and healthcare professionals' lack of cultural competency were some of the key problems discussed. Integrated findings revealed the importance of health literacy as a shared responsibility and caregivers' challenges further amplified by healthcare providers and organizations.{A0}

ISBN: 9798382812076Subjects--Topical Terms:

533633
Gerontology.
Subjects--Index Terms:

Health disparities

Examining Health Literacy and Medical Discrimination in Black Caregivers of Persons Living With Dementia: An Explanatory Sequential Mixed Methods Study.
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520 $a Background: Disparities in the Black dementia family caregiving experience are well-documented, specifically in healthcare management. Black caregivers experience challenges with healthcare system navigation, communication with healthcare providers, and have limited knowledge of and access to dementia-related information and resources. These tasks require adequate health literacy. Individual health literacy may contribute to disparities in healthcare management among Black caregivers of persons living with dementia (PLWD). Despite the existing exploration of health literacy and previous study findings highlighting its importance in family caregiving, these studies included few to no Black caregivers. Rates of limited health literacy are higher among Black Americans. Medical discrimination may also contribute to challenges with healthcare management among Black caregivers, as well as present a barrier to achieving/maintaining optimal health literacy.Purpose: The purpose of this study was to examine health literacy and medical discrimination in Black caregivers of PLWD.{A0}Methods: An explanatory sequential mixed methods study was conducted in a sample of Black caregivers of PLWD. A cross-sectional quantitative design was first carried out, and a survey was distributed to 99 Black caregivers across the U.S. Follow-up qualitative procedures consisted of 4 focus groups with a purposeful sub-sample of 10 caregivers guided by the Discover and Define phases of the Design Thinking Process. Data integration took place at the planning stage for qualitative procedures (methods) and analytic and interpretation stages. Meta-inferences were drawn from integrated data.{A0}Findings: Caregivers scored highest on the health literacy scale 'Understanding health information well enough to know what to do' and lowest on the scale 'Feeling understood and supported by healthcare providers.' Bivariate analyses of health literacy scales and medical discrimination scores were all significant; as caregivers' experiences of medical discrimination while seeking care for PLWD increased, health literacy scale scores decreased. Qualitative data gave a deeper understanding of Black caregivers' most salient health literacy problems. Receiving health information in medical jargon; insurance coverage dictates navigation; and healthcare professionals' lack of cultural competency were some of the key problems discussed. Integrated findings revealed the importance of health literacy as a shared responsibility and caregivers' challenges further amplified by healthcare providers and organizations.{A0}
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