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Children with special health care ne...

Sisk, Cara C.

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Children with special health care needs and disabilities: Perceptions of health care experiences.

Record Type:	Electronic resources : Monograph/item
Title/Author:	Children with special health care needs and disabilities: Perceptions of health care experiences./
Author:	Sisk, Cara C.
Published:	Ann Arbor : ProQuest Dissertations & Theses, : 2016,
Description:	255 p.
Notes:	Source: Dissertations Abstracts International, Volume: 78-09, Section: B.
Contained By:	Dissertations Abstracts International78-09B.
Subject:	Special education. -
Online resource:	http://pqdd.sinica.edu.tw/twdaoapp/servlet/advanced?query=10242687
ISBN:	9781369453263

Children with special health care needs and disabilities: Perceptions of health care experiences.
Sisk, Cara C.

Children with special health care needs and disabilities: Perceptions of health care experiences. - Ann Arbor : ProQuest Dissertations & Theses, 2016 - 255 p.

Source: Dissertations Abstracts International, Volume: 78-09, Section: B.

Thesis (Ph.D.)--Tennessee Technological University, 2016.

This item must not be sold to any third party vendors.

Children with special health care needs (CSHCN) and disabilities are a vulnerable population with complex medical needs requiring many health care services that often go unmet (Eddy & Engel, 2008; Houtrow, Okumura, Hilton, & Rehm, 2011). The purpose of this study was to articulate the perceptions of CSHCN and disabilities with a goal to improve their health care experiences. Guided by a constructionist epistemology, this qualitative study used interpretive description (Thorne, Kirkham, and MacDonald-Emes, 1997) to assess the health care perceptions of school-age CSHCN and disabilities. Primary research questions were: 1) What are children's perceptions of their health care experiences when they have both special health care needs and disabilities? and 2) How do personal health care experiences impact children with both special health care needs and disabilities? Child-centered data collection methods included interviews, drawings, body maps, and medical play. Inductive and visual analyses yielded themes pertaining to CSHCN and disabilities perceptions: "This is my body," "I know the health care environment," and "I understand medical treatment." Participants specified various impacts of their health care experiences including: "My diagnosis affects me," "I take the good and the bad," and "I hurt, and I cry." Findings indicated the participants' health care perceptions and impacts were enhanced by the combination of child-centered data collection methods. The cognitive development of the children emerged as a significant consideration for individualized care. This study aimed to improve the quality of care CSHCN and disabilities receive by sharing the children's perspectives with health care professionals.

ISBN: 9781369453263Subjects--Topical Terms:

516693
Special education.

Children with special health care needs and disabilities: Perceptions of health care experiences.
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520 $a Children with special health care needs (CSHCN) and disabilities are a vulnerable population with complex medical needs requiring many health care services that often go unmet (Eddy & Engel, 2008; Houtrow, Okumura, Hilton, & Rehm, 2011). The purpose of this study was to articulate the perceptions of CSHCN and disabilities with a goal to improve their health care experiences. Guided by a constructionist epistemology, this qualitative study used interpretive description (Thorne, Kirkham, and MacDonald-Emes, 1997) to assess the health care perceptions of school-age CSHCN and disabilities. Primary research questions were: 1) What are children's perceptions of their health care experiences when they have both special health care needs and disabilities? and 2) How do personal health care experiences impact children with both special health care needs and disabilities? Child-centered data collection methods included interviews, drawings, body maps, and medical play. Inductive and visual analyses yielded themes pertaining to CSHCN and disabilities perceptions: "This is my body," "I know the health care environment," and "I understand medical treatment." Participants specified various impacts of their health care experiences including: "My diagnosis affects me," "I take the good and the bad," and "I hurt, and I cry." Findings indicated the participants' health care perceptions and impacts were enhanced by the combination of child-centered data collection methods. The cognitive development of the children emerged as a significant consideration for individualized care. This study aimed to improve the quality of care CSHCN and disabilities receive by sharing the children's perspectives with health care professionals.
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