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Sharing by design: Understanding and...

Skeels, Meredith McLain.

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Sharing by design: Understanding and supporting personal health information sharing and collaboration within social networks.

Record Type:	Language materials, printed : Monograph/item
Title/Author:	Sharing by design: Understanding and supporting personal health information sharing and collaboration within social networks./
Author:	Skeels, Meredith McLain.
Description:	236 p.
Notes:	Source: Dissertation Abstracts International, Volume: 71-12, Section: A, page: 4230.
Contained By:	Dissertation Abstracts International71-12A.
Subject:	Health Sciences, General. -
Online resource:	http://pqdd.sinica.edu.tw/twdaoapp/servlet/advanced?query=3431256
ISBN:	9781124308418

Sharing by design: Understanding and supporting personal health information sharing and collaboration within social networks.
Skeels, Meredith McLain.

Sharing by design: Understanding and supporting personal health information sharing and collaboration within social networks. - 236 p.

Source: Dissertation Abstracts International, Volume: 71-12, Section: A, page: 4230.

Thesis (Ph.D.)--University of Washington, 2010.

Friends, family, and community provide important support and help to patients who face an illness. Unfortunately, keeping a social network informed about a patient's health status and needs takes effort, making it difficult for people who are sick and exhausted from illness. Members of a patient's social network are often eager to help, but can be unsure of what to do; they must balance their desire to help with trying not to bother a sick friend. In this dissertation, I describe research on how people share health information within their existing social networks and present technology to create informed, helpful networks. I used a mixed methods approach of interviews and an online questionnaire to provide a detailed analysis of what health information people share, who they share with, mode of transmission, and why people share personal health information.

ISBN: 9781124308418Subjects--Topical Terms:

1017817
Health Sciences, General.

Sharing by design: Understanding and supporting personal health information sharing and collaboration within social networks.
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100 1 $a Skeels, Meredith McLain. $3 1676115
245 1 0 $a Sharing by design: Understanding and supporting personal health information sharing and collaboration within social networks.
300 $a 236 p.
500 $a Source: Dissertation Abstracts International, Volume: 71-12, Section: A, page: 4230.
500 $a Adviser: Wanda Pratt.
502 $a Thesis (Ph.D.)--University of Washington, 2010.
520 $a Friends, family, and community provide important support and help to patients who face an illness. Unfortunately, keeping a social network informed about a patient's health status and needs takes effort, making it difficult for people who are sick and exhausted from illness. Members of a patient's social network are often eager to help, but can be unsure of what to do; they must balance their desire to help with trying not to bother a sick friend. In this dissertation, I describe research on how people share health information within their existing social networks and present technology to create informed, helpful networks. I used a mixed methods approach of interviews and an online questionnaire to provide a detailed analysis of what health information people share, who they share with, mode of transmission, and why people share personal health information.
520 $a My research culminates in the design of new technology that enables patients to create an informed network and catalyzes helping activities within that network. I used participatory design methods with breast cancer patients and survivors to ensure that the design is based on a firm understanding of users' goals, priorities, constraints, and current sharing practices. Together, we designed a technology that allows a patient to keep their social network up to date, solicit help from their network, field offers of help, and collaborate through discussions. The design is motivated by the insight that a more informed social network is better able to provide needed help and support. Advocating that patient-centered technology should allow users to share personal health information with others comes with the responsibility to contribute to the effort to create usable privacy interfaces. I present a method for evaluating the transparency of privacy controls and use this method to identify a transparent icon that can be embedded within interfaces to show how information is being shared.
520 $a Embracing the complex picture of how patients manage and share personal health information with others will ultimately improve the technology available to support patients. I contribute a better understanding of current sharing practices and technology to enable patients to create informed, helpful social networks.
590 $a School code: 0250.
650 4 $a Health Sciences, General. $3 1017817
650 4 $a Information Science. $3 1017528
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710 2 $a University of Washington. $3 545923
773 0 $t Dissertation Abstracts International $g 71-12A.
790 1 0 $a Pratt, Wanda, $e advisor
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791 $a Ph.D.
792 $a 2010
856 4 0 $u http://pqdd.sinica.edu.tw/twdaoapp/servlet/advanced?query=3431256